cahn: (Default)
cahn ([personal profile] cahn) wrote2022-06-09 10:08 pm

Autism in Heels (O'Toole)

2/5. This is a rare ranking for me, as usually I don't finish books I dislike. And I would absolutely not have finished this book either had I not been reading it for a friend (who thinks her daughter may be on the spectrum). It's one of those irritating half-memoir-half-pop-nonfiction books. (I first wrote "pop science" but I don't think it rises to that level; O'Toole occasionally cites a paper but it's mostly her pontificating.) I think this book could be reasonably useful for a person with ASD who is exactly like O'Toole, or who has a child with ASD who is exactly like her, but wow am I not that person.

I think if it had just been a straight memoir I would have liked it rather more; the thing that bugged the heck out of me was how I got the distinct impression O'Toole was often making the assumption that her story (which was traumatic in a number of ways, including pronounced bullying, lack of support from parents/teachers/psychiatrists, serious self-esteem problems, sexual abuse, and eating disorders) was the ur-story of every Asperger girl ever. I mean, a lot of the book is in first person plural ("we" are like this and "we" feel that). And I suppose that could be read as shorthand for "many girls could be like this, and you should watch for it," which I think is a really good message -- I had no idea that there was such a large correlation between ASD girls and eating disorders before reading this book -- but that's not the message she actually said. She's at best really sloppy about her pronouns, and I don't mean in the he/she/they sense, but in the I/we sense, often giving the sense that she is assigning all her traumas to all ASD girls ever (and honestly I think she actually believes this). I think if I were a parent reading this book who didn't have marked ASD tendencies myself, I'd be super panicked that my kid was doomed to all these horrible traumas.

(I'm not panicked, because even those of us growing up in the 80's like O'Toole and me weren't necessarily doomed. Like basically everyone else, I found middle school to be horrible, but no more than anyone else really, and had a bout with poor self-esteem/caring too much what other people think in my teens-to-20's (again, as far as I can tell, totally typical) but all things considered I honestly have had a pretty great life. I won't deny that quite a lot of that is probably due in large part to luck (including luck in my family, my personality, and what kinds of lessons I learned earlier than her, and early diverting into math/science, which is much more welcoming of certain types).)

To be honest, I kind of feel like the main point of the book is "let me spew my insecurities at you and assume that you share them," which is not at all my favorite kind of book. And I could have done with way fewer inspirationally-angsty sections where she pontificates about how she gets what it's like to be an autistic woman because we've all had those experiences and feelings! (We have not all had those experiences and feelings.)

I also feel like she is irritatingly prone to ascribe every single thing about her and everything that ever happened to her (particularly if it's bad, or if she has negative feelings about it) to ASD. She's also (by her own admission) extremely smart, and a lot of the stories she tells about "see!! how hard it is to grow up ASD??" I feel could just as well have been told about any smart child with a lot of peers (and a mom) who didn't know how to deal with her. For just one example, there's a story she tells about how she knew that menstruation involved an egg (and not much else), and so she asked her mom if she could see the "period egg," and then apparently to this day feels embarrassed about it, which... uhhh... okay, I'm not exactly NT, but that sounds actually like a really smart question given that she didn't know the egg is a single cell?? And one that any reasonably intelligent child growing up thirty-odd years ago who only knew that might ask??

In another example of how Everything Is ASD, she also blithely claims that her inability to do geometry is because she's autistic, in a passage that is just stunning for its wrongheadedness.

Neurotypical minds (and geometric proofs) work... top-down, based on deductive reasoning, which is usually thought of as a skill that develops without any teaching or training. And for nonspectrum thinkers, that's mostly true. They see a fact -- maybe a facial expression, maybe a social situation -- and easily link it to a clear, logical conclusion. Our spectrum minds operate differently... Generally, we [spectrum minds] understand things, people, ideas -- life -- using inductive reasoning. We go from the bottom-up, starting with specific, concrete experiences, facts, and examples. Then we spot trends, notice patterns, and discover bigger concepts that link it all together.
WHAT
NO
I mean... nothing about this makes any sense at all?? I've never heard of NT people learning social rules via deductive reasoning, or really with a formal reasoning process at all?? And NT minds (generally speaking, of course! and of course I know a lot of exceptions) are famously bad at deductive reasoning and good at (often fallacious) inductive reasoning, and if deductive reasoning is not taught or trained it's because it's kind of hard to do so! I will not go as far as to say that Aspergers minds are deductive reasoning minds -- that would be falling into O'Toole's terrible fallacious generalization habits -- but E's mind, at least, is a deductive reasoning mind; she's always been really good at it, but earlier in her life it was really hard for her to reason inductively (it wasn't a rigid rule! she might be wrong!), and this was a big problem for her. (She can do it now, but it's definitely not her most natural mode.) I mean, O'Toole is clearly flamingly bad at deductive reasoning, but I... don't think she can say it's because she's on the spectrum.

In somewhat more shallow news, there's a lot about O'Toole's style that just grates on me, it's very breathless and all over the place and she uses italics like they're going out of style, and she will be making one point and then just start talking about something else, and just keeps going even when she's only talking tangentially about the point that she was making earlier -- well, okay. As you can see, this is the way I naturally write (and speak) myself! (D had to repeatedly ask me, when we dated/married, to add some context/transition words when I completely changed the subject during a conversation, because I was totally not used to doing that.) So I didn't have too much trouble reading it, but I do think that this is what editors (betas, lol) are for, and an editor should have edited the heck out of this and structured it a lot more and taken out a lot of italics. (Okay, I'll... mostly... stop with the italics now. But that is kind of what it felt like.)

As you might have expected from that last paragraph, the book is extremely disorganized, with her flitting from random story to other subject, often without clearly saying what she's talking about. I think she thinks she's being ~genuine~ and ~individualistic~, but really she's mostly being disorganized (which again! I write like this! This review is kind of like that! I get it! But this is why I always go through a bunch of drafts, because being able to communicate with other people is a Thing that is Useful), and an editor should really have gone through this. There's one chapter that's entitled "Predators and Fandom Families," and if you're scratching your head wondering what the connection is and if she's going to talk about, oh, idk, fandom scandals of the past, you would be wrong! She just... decided... she wanted to talk about predatory behavior that happened to her and also about how fandom is nice for ASD kids to meet other people who share interests. In the same chapter. I think the common thread is that... ASD kids want to fit in too?? (E only vaguely wants to fit in, but I certainly did when I was a kid and didn't know how) and that can lead to vulnerability to predators, which happened to her, but also a better solution to this is for them to find fandom "families." I think. Mind you, she never draws these connections very clearly, so you have to kind of infer it from the stream of consciousness.

I'm not sure what her main thesis is given the disorganization, but I think it's that we should ~celebrate~ every individual person as being individual people and each having differences, but also that ASD explains everything about Asperger girls, who are all Exactly Like Her. Yeah. It's kinda inconsistent.

With all that, as I've mentioned in places above, there were bits and pieces here and there where I did find out things I didn't know, or that made me think about things a little differently. ASD kids not being good at context -- I've seen that before, but not phrased quite that way, and, yeah, that's me.
This bit was interesting to me:

For many girls, "showwomanship" [sic] skills far exceed comfort with spontaneous or one-on-one social interaction. Intuitive use of this sidestep around social anxiety can lead to excellence in teaching, narrative presentation, litigation, and performance.

Because, huh. I wouldn't say I had social anxiety exactly, but I have always been much better at performance skills than in social interaction, and I've discovered this late-breaking talent of actually being... quite good at giving talks at church and teaching adults at church. (Not kids; kids are too unpredictable, lol. But adults are reasonably predictable! Also, sadly this doesn't magically make me better at giving talks in general, it's just that I've had more experience in figuring out the specific rules for church talks. And also, this was only once I figured out the rules; I was an extremely terrible teacher the first time they called me to do it, in grad school, to the point where my poor home teachers had to stage an intervention.) E is probably better at performance skills than social interaction, but she doesn't particularly like it.

Also, this passage. She's talking about doing research to figure out what was wrong with her daughter's GI problems (which is a harrowing story of how doctors wouldn't listen to her and thought she was just complaining about "too much laundry," omg -- and again, when she talks about her own experiences, they're often quite compelling!):

Back then, much as later on, I did serious, responsible research and spoke with enough authority that every single physician we met asked if I'd gone to med school. Not rudely. They just figured I must have. Oh, how I wish I'd known to have said, 'No, I'm not an MD. I'm autistic, so I can absorb, retain, and access vast amounts of information. In a way that I've only ever encountered among others on the spectrum, my mind grabs onto something, like a little ankle-biting dog, and until the pieces make sense simply will not let go.'

Okay, uh, aside from the irritating part where, again, the wording implies that she ascribes her ability to absorb information as something that one can do if and only if one is autistic (both sides of which I take issue with), [personal profile] mildred_of_midgard, you know whom I thought of :P

(Also, this is just one two small but super annoying bits: she brings up drapetomania (an 1851 hypothesized mental illness causing enslaved Africans from fleeing plantations, because why else would anyone ever do that??) to (I think, because her writing is super unclear) make the point that doctors don't look at the whole person... and then later talks about and appropriates Sojourner Truth's "Ain't I a woman?" speech (she even uses the word "hijacking"!) to ask why other women drag on her for being (she quotes a critic) "smart, pretty, popular." I don't disagree that she should still be able to talk about her trauma without getting slammed for it even if she is attractive and intelligent! But argh, in a 2018 book about a white upper-middle-class profoundly-gifted ASD woman, I think these particular analogies could 100% have been left out. And yes, I can see that this is not being able to do context/not reading the room/mind-blindness at its peak, but like. Again: Don't you have a NT editor?)

Anyway -- if you can sort of disassociate the interesting and compelling stories she tells from either needing them to have structure or from the extreme tendency to group all ASD girls together, or from the bits which are either offensive or flat-out wrong -- there are some good things here! It's just that, oof.
mildred_of_midgard: (Default)

Re: Another book rec

[personal profile] mildred_of_midgard 2022-07-02 09:13 pm (UTC)(link)
That's all very interesting!

Here's my working hypothesis: E's difficulties are a matter of degree, not kind.

My opinions:

- The things she reacts maladaptively to are also stressors for other people.

- The strategies she uses to deal with stress fall into the same categories as everyone else.

- The reason she reacts maladaptively to stressors that her peers react more adaptively to is that the *amount* of stress she experiences exceeds her emotional regulation abilities. (This is the thesis of Lost at School, that children react maladaptively when the challenges they face exceed their coping abilities.)

- Like all children, she's getting mixed growth and fixed mindset messages from her environment. Thanks to you and D and her teachers, she's getting more growth mindset messages than many kids, so kudos to everyone involved!

- In my opinion (as you know), the educational system is set up with a lot of "It's done this way because it's always been done this way" that doesn't take recent cognitive science findings into account. This is true even of more progressive schools like hers.

- Because things have always been done a certain way, and because most kids have the coping skills to handle the resulting stress more adaptively than E, these things that have always been done become "invisible stressors"--in that people don't realize that these cause stress for everyone. The stress is just more visible in the kids who react maladaptively; it's there in the other kids (and adults) too. I have an essay's worth of opinions on what causes invisible stress, what's cognitively more efficient, and how to identify necessary vs. unnecessary stressors.

- Some of those invisible stressors prime children to think in fixed mindset even if they've been taught growth mindset, and even if they believe and espouse it.

- My opinion is that even the kids who are reacting adaptively to unnecessary stressors are expending unnecessary mental energy on coping, and that all children would be better off with those unnecessary stressors identified and eliminated.

Two days ago, I composed an essay on what my model of the brain looks like, what I think are necessary and unnecessary stressors, and how the unnecessary stressors could be replaced with a more cognitively efficient method of learning. (I say "children" a lot in the above, but that's a feature of the specific environment; the causes and effects and concepts all apply to humans in general.)

Everything E is doing...is consistent with the model in that essay, assuming only that her reactions are more extreme because her emotional regulation isn't up to the demands of her environment. Everything she's reacting to as a stressor...is also something that I reacted to as a stressor. I was able to react more *adaptively*, like most kids, but when I look back on my life, the story of my education is "I wasted all this time I won't get back on cognitively inefficient methods and unnecessary stress, time that I could have spent learning more."

I might edit this essay, omitting all references to E, and post it in my DW, since I post a lot on pedagogy.

I did talk to her about how it's age appropriate to hear it's fine to be wrong when you're a kid, but as an adult there's definitely a premium to be able to do things correctly, and her age group is in a transitional stage right now.

Lol, wow, I would have said the opposite! That the way the school system is set up, you're responsible for a finite set of assigned material, and the authority figure knows exactly what that material is. A wrong answer means you haven't learned something you've been taught, and you need to fix that, because the authorities have decided you need to know this.

Once you become an adult--yeah, some things are like this, like driving. But once you get more autonomy in what you're going to learn, like especially starting in college, you realize that 99.99999999% of human knowledge is something you don't know and are never going to know. Stuff you encounter that you don't know how to do no longer means "You were taught this and have failed to learn it by the time your knowledge was assessed and you must fix that." It means, "Decide whether you want to learn this, and if you do, learn it."

Adults are definitely expected to have mastered material and acquired skills that children haven't yet, but the process of mastering material and acquiring skills as an adult involves just as many wrong answers, and adults are more likely to end up in a healthy environment (which is not to say that all do), where a wrong answer doesn't mean "you should already know this."

When I became an adult was when I stopped being so defensive about not knowing stuff and also so show-offy about knowing stuff that other people didn't. Precisely because there was no longer an assumption that everyone around you has been through the same educational process and is being held to the same expectations, so if someone else knows something, you should know it, and if you know something that they don't, ha! you're better at learning. It just means you've spent your time differently.

One person knows physics, one person knows database administration. Two database administrators who've worked with different databases know different things. One person with an interest in history knows more about dysfunctional families and German literature, one person with an interest in history knows more about military and diplomatic history, one person only started casually studying three years ago!

There are still right answers and wrong answers, and people more proficient and less proficient in a skill, but wrong answers are waaaay more common and way more socially acceptable (in a healthy, supportive environment).

If I had a child in my life, I would tell them, "Yeah, I'm sorry you're stuck in a fossilized school system with pedagogical roots in the Middle Ages, but when you're an adult, life-or-death things like driving aside, knowing the answer is way less important than being able to find out the answer and being willing to accept new information. And that's way less stressful. It gets better."

[And when they inevitably went, "Why can't we do it that way NOW?!" I'd be like, "Well, let's see how much of that we can get away with. *g*"]

This is what I keep trying to teach my junior engineers: "You're not solving simple problems with a known answer, so don't just submit your best effort and wait for the authority figure with the answer key to check your work. There is no answer key. We are solving complex, novel problems as a team. Evaluate your work, identify what part you don't know or aren't sure of, communicate to a more experienced person which part you need help with, and be open to feedback. I'm sorry the school system prepared you to submit your best effort and hope for a good score."

It's gotten to the point where I've had to explicitly spell this out enough that I'm thinking of asking my boss if there's anyway we can communicate to the local software development school that we care less if the graduates they send us can do Python list comprehension, and much more if they can apply the above method to learning anything they need to. Because when they can't, their productivity is way low, their bosses who follow this method instinctively can't necessarily identify what the problem is or teach this method, they just see the low productivity and attribute it to a lack of motivation, and everyone is frustrated, eventually culminating in a firing that I thought was unnecessary.

As I said in email, my boss (my good boss!) thought old JE was a lost cause and new JE is the cat's pajamas who doesn't need any instruction, but I see them both needing the same explicit instruction that they never got. The difference is that now that I'm team lead, I can give new JE that instruction before our boss gets frustrated with his lack of output and decides to fire him.

Given all that, and given that I know you've said the same thing about your old JE, and you said something similar in a physics pedagogy conversation we once had, how do you think E would do with an approach like this?

Step 0: Explain the above to her.

Step 1: She gets a set of math problems. She does as much as she can. She identifies what she's not sure about, and what she doesn't know how to do at all.

Step 2: When she's ready, she asks for the answer key. She uses the answer key to check her own work, and to teach herself what she can from it.

Step 3: When she's taught herself what she can from the answer key, she identifies what she still doesn't understand and asks for help with that part.

Step 4: She gets a new problem set covering the same skill (or the component skill that she identified as needing to practice). Rinse and repeat until she doesn't need the answer key anymore, because she's mastered the skill and is ready to move on to a new one.

Tell her that to prepare for adult life, she needs to learn not just specific math techniques (that she's frankly going to forget anyway if she never uses them) but a problem-solving and communication approach that will work when there's no authority figure and the answer to the problem isn't known, but a team of people needs to solve it together using the various skills they've acquired over their lifetimes.

(Not all jobs are like this, but given her abilities and interests, I think she's more likely to end up in one like yours or mine than in one where she's solely following procedures that she can't deviate from.*)

Given an approach like that, or one based on it and fine-tuned for her, how do you you think she'd react emotionally? How effective do you think it would be in helping her master the math material and the self-assessment and communication technique?

She still needs to learn emotional regulation, and she still needs to learn to accept feedback, but my essay, if I ever post it, explains why I think "submit a best effort and wait for a score" is neither a cognitively efficient method of learning nor an environment conducive to learning the emotional regulation necessary to accept constructive feedback.

* And even if she ends up doing something deterministic for a living--there's still the rest of real life which doesn't come with an answer key, but is a team of people solving a complex, novel problem together, using the different skills they've acquired over a lifetime ...like, say, raising a child. There are some obvious wrong answers, like "Let child play in traffic," but outside of that, there's a lot of "Tried X, worked for child 1 but not child 2, trying something else with child 2." Or writing historical fanfic and getting it betaed. Maybe tell her that in this context. ;)

I do that a lot at work, actually. I model the growth mindset by telling my team that we all make mistakes, and that I'm going to highlight the importance of a chill acceptance of mistakes and receptiveness to feedback by calling attention to my own mistakes and weak areas, and my efforts to grow and successes in growing, so that it feels less threatening when I call attention to their mistakes and weak areas to help them grow. It seems to help!
Edited 2022-07-03 01:10 (UTC)
mildred_of_midgard: (Default)

Re: Another book rec

[personal profile] mildred_of_midgard 2022-07-04 04:11 pm (UTC)(link)
Not replying to the main part of this because I want to sleep tonight instead of composing essays in my head, but, tangent:

let me just say right now that I never got much practice in sitting with problems I didn't know how to do and struggling with them for a while and figuring them out

Hahaha, I feel like waaay too much of my experience was with sitting with problems I didn't know how to do and struggling with them and then not figuring them out because I hadn't been given the necessary tools, and all this did was create a feeling of helplessness and resentment.

Long ago, I read a TA online saying, "They always tell us to make the students who come to us for help work through the problem themselves because that's how they'll learn, but actually what I find in practice is that the student is almost always missing some key piece of information. Once you give them that information, they can apply it to solving the problem just fine. If you don't teach them that bit of information, they're not going to independently discover that piece of mathematics for a homework assignment."
mildred_of_midgard: (Default)

Re: Another book rec

[personal profile] mildred_of_midgard 2022-07-08 05:37 am (UTC)(link)
Then, a good way through the class, he told us that he had a massive brain tumor, which hadn't been caught by university health services until it got really bad. (!!) Wow, this explained SO MUCH and we felt super sorry for him.

Oh no! I feel for him too! I'm glad you found he recovered. I had a philosophy professor with a brain tumor, but it didn't affect his teaching, thankfully! (He was a very good teacher and was my first introduction to cognitive science, including some stuff he taught me that makes E's behavior not seem weird to me. ;) Staying well off that topic, though!)

what wasn't common was that in my nightmares it would always be specifically a topology class.

I can imagine, omg!

Also, it occurred to me recently that--okay, there are a few reasons junior high was the most stressful period of my life and my single least favorite to date, but a major one was that there was a running theme among the teachers of "teach X; test Y." Like, stuff totally unrelated to the class, that they didn't teach us the skills for, and that we didn't have the tools to even acquire the skills for. Almost all of these examples are from seventh and eighth grade. And those are just a subset!

I remember one particularly bad one was: my eighth grade American history teacher got it into his head that we were all dropout risks, and decided to make it his Holy Mission to scare us into staying in school.

Note: I was in the honors class. My best friend in that class went on to get a masters in engineering and work at Boeing. One of the other kids is now at Google. I'm me. When he first announced this, I thought he was overreacting and maybe he should stick to making his non-honors classes doing it.

Then he described the project, which was to find a source of income and come up with a budget that would cover things like car payments and car insurance payments. He told us this would be impossible. That was the point of the assignment.

We had to make phone calls (this was before internet!) to, like, car insurance companies to see what kind of a deal we could get. Not very good ones, given that we were like 13-14!

I handed in my best attempt and got, I believe, a B, with angry notes that things I'd proposed would never work in the real world. I knew that, this was my best floundering effort to do something he said was impossible!

He was giving off angry vibes the entire time he announced, discussed, and gave us feedback on this assignment. It was like, *personal*, like we'd all personally threatened to drop out of his class and become bums.

Me, in eighth grade: "I'm going to get a PhD in physics! Why are you punishing me for not knowing how car insurance works at age 13?? What does this have to do with American history? Why are you bringing my grade average in this class down?"

Of course, my two worst classes were:

7th grade biology: home of dissections, at the precise age when my gross animal squick peaked. Added to the random igloo and magazine assignments described in the post linked above, I was one stressed child in that class. That was the class I dreaded the most in my entire life.

8th grade math: teacher who didn't want to be there and was phoning it in. You never saw your graded homework until the day before the exam, at which point you got a whole pile back. Learning from wrong answers? What even was that? The homework was graded and sat piling up in her outbox, visible, for weeks until the exam. It wasn't taking her that long to grade it. We just weren't to touch it. This was 100% clearly because she didn't want to answer questions, and if we had our homework in hand, we might ask questions. That was the objectively worst teacher I had before college. (The all-time worst teacher I had was in grad school, but it was fun rather than stressful because first I could publicly humiliate him to general applause, then I could drop the class, to our mutual relief.)

Ugh, junior high was the *most* stressful. Even freshman year of college, living away from home and being sleep-deprived because of MY ROOMMATE, and my physics profs expecting us to intuit and apply math they hadn't taught us, and my various English class stresses that weren't the fault of the teacher so much as the system and my particular brain...didn't come close. (Besides, I'd escaped my parents! That was worth any amount of fears of losing my scholarships to physics and English grades.)

Ugh, I just want to say THIS, so much to everything I wrote in that comment.
mildred_of_midgard: (Default)

Re: Another book rec

[personal profile] mildred_of_midgard 2022-07-08 08:06 pm (UTC)(link)
Yeah, I think part of the reason we've been talking past each other is that I have *not* been meaning to talk about problem-solving skills as an end in themselves, only as a means to an end; everything I've said about problem-solving (except in obvious tangents) has been aimed at E's emotional regulation difficulties. But given how much I've said about problem-solving in the course of talking about emotional regulation, and given our history of talking about pedagogy, I can see why you would be responding to that aspect of my comments!

Holding off on more for now. :)
mildred_of_midgard: (Default)

Re: Another book rec

[personal profile] mildred_of_midgard 2022-07-04 04:03 pm (UTC)(link)
Yep! I wasn't clear, but under step 1, I was collapsing everything included in "the usual method for attempting to solve the problem/learn the material," because I wasn't trying to suggest a revision for that method, just the part that came after it.

most brains (idk about yours, as we've talked a lot before about your brain working in nonstandard ways in ways that may intersect with this) work in such a way that learning through doing the problem when possible, even with hints or some mentored help, is way, way more efficient than not knowing how to do the problem and then reading the solution

If we're talking about math problems specifically, yes. If we're talking about learning in general, it depends on the skill being acquired.

learning through doing the problem when possible, even with hints or some mentored help, is way, way more efficient than not knowing how to do the problem and then reading the solution and then getting another problem.

Yes, what I meant was, after you've gone as far as you can without having the solution (using the usual method), instead of then submitting your assignment to be judged by someone else (which is the part that is stressful and in my opinion, less efficient for learning because of the longer feedback loop), you get unblocked on going further in a shorter amount of time with less stress.

I'm glad she's getting practice with the collaborative problem-solving method! It sounds like really what she needs is help with the emotional aspects of feedback (which I have many opinions on, am holding off on a full reply on that topic because I found I was composing my opinions in my head instead of sleping, which is No Good. ;))